Is there a CARBAGLU Patient Support Program?

Recordati Rare Diseases, the distributor of CARBAGLU® (carglumic acid), has a free support program for people taking CARBAGLU as well as their caregivers, doctors, and medical staff. This program can help to answer questions about insurance coverage and related issues.

1-888-454-8860 (toll-free)

Recordati Rare Diseases Patient Support Program

Contact the Recordati Rare Diseases Patient Support Program for help with:

  • Insurance verification

    Get help with confirming that your insurance company will cover CARBAGLU, and get help in understanding your insurance plan benefits.

  • Prior Authorization support

    Get help working with your doctor’s office and insurance company if additional approvals are needed.

  • General inquiries

    Get answers to any questions related to accessing CARBAGLU.

  • Co-Pay Support Program

    Get help with insurance co-pay and
    co-insurance costs.

  • Alternate funding referrals

    Get help in researching alternative forms of medication coverage, or get referrals to other possible sources of funding.

  • Patient Assistance Program

    Get assistance with accessing medications if you don’t have insurance or are underinsured.*

    *Eligibility requirements may apply.

Where can I get more support?

For more information about NAGS deficiency, check out these resources:

  • The National Urea Cycle Disorders Foundation (NUCDF) is dedicated to the identification, treatment, and cure of urea cycle disorders. NUCDF provides information and education for families and doctors. NUCDF offers two support programs for families: a mentor program, which matches newly diagnosed families with a mentor from the UCD community; and a networking program, which enables UCD patients and families to communicate with each other.

  • Genetic and Rare Diseases Information Center (GARD) of the National Institutes of Health provides information for individuals with genetic and rare diseases, their families, and others.

  • The National Organization for Rare Disorders (NORD) is dedicated to helping people with rare diseases. NORD provides information and resources for families, as well as ways to connect with others and get involved in the rare diseases community.

  • The Urea Cycle Disorders Consortium, part of the Rare Diseases Clinical Research Network founded by the National Institutes of Health, is a team of doctors, nurses, and researchers working together to improve the lives of people with urea cycle disorders through research and education. The purpose of the consortium is to provide ways for patients to join with doctors and researchers through participation in research studies.

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